Done and Done - Promoting Disability Inclusion by Helping Our Autistic Son Transition from College to Workforce
In December 2015 our son Trevor, who was diagnosed with autism at age 5, graduated from Arizona State University with a degree in Film and Media Studies. Despite the challenges and all of the change Trevor endured in his college experience, he graduated with a 3.5 GPA with very little assistance. He also experienced living by himself, living with nice and not-so-nice roommates, internships, and a summer job as a photographer at a boys camp in North Carolina. He gained a tremendous amount of life experience and learned a ton about himself as a person. His graduation in December put an exclamation point on a very rich college experience. But college is only one race in the marathon called life; his next race - employment - was yet to start. Read more
Typically, career choices are made based upon responsibilities, compensation, or prestige where a businessperson makes a change to get a higher salary, more responsibility, or greater prestige. What about the situation, though, where the driver behind a career choice isn’t any of these; where it’s the needs of a child that drive the change? My choice was precisely that.
Trevor was a happy, normal, active baby. He was able to laugh, coo, cry, and do all of the other normal things that his big sister, Briana did at that age. To my wife Patty and me, everything seemed to be just fine. At about age two, we noticed that Trevor was hardly saying any words and was very into his own world with puzzles, coloring, and videos.
Book Review: Asperger's and Adulthood-A Guide to Working, Loving, and Living With Asperger's Syndrome
Colleagues - I just created a daily calendar for dads using our Six-Word Lessons format. Each month I focus on a specific topic, such as "Planning for the Future", "Balancing it All", "Managing Your Career", etc. Every day I send out a Six-Word Lesson for that topic (see samples above). To avoid flooding inboxes with daily emails, I am doing only through social media. If you would like to get these lessons in your social media feed click on one of the below social media buttons and follow me. I also appreciate you sharing the lessons in your social media feed :-).
As always would love your feedback. Please feel free to share your thoughts with me.
My fiction book, The Lawless One and the End of Time, has four main characters who meet at age 14 in Naples, Italy and all grow into globally-recognized figures. One of the characters, Bert Winn, was fascinated with history. He loved the concreteness of historical facts; they either happened or they didn’t. He met and fell in love with Laura, a math major he met in college. He graduated college with a Ph.D. in history and became an acclaimed professor. Bert and Laura married and had a son they named JT. The Winn family became internet celebrities and millions of people subscribed to their online video blog. Subscribers loved to hear their messages of fact, inspiration, and challenge. Their message? An unvarnished, inspirational view of life with Autism Spectrum Disorder.
Bert started showing signs of autism at eighteen months with speech delay, difficulty maintaining eye contact, and a dislike for being cuddled. As Bert grew, he and his mother developed strategies for how to accommodate some of Bert’s sensitivities, such as a “beach ball kiss,” in which an imaginary beach ball filled space between them when they kissed hello and goodbye. Laura too had sensory issues, particularly with clothing fabrics. The two of them learned to cope with their sensitivities through the years, so they became normal for them. It also felt normal for their son, JT, to be on the autism spectrum. They didn’t view themselves as people to be pitied, but used the opportunity to help others understand the world of autism and how people on the spectrum could thrive just like anyone. Their story educated and inspired millions and gave those affected by autism hope.
The story of Bert, Laura, and JT were heavily influenced by my wife Patty’s and my experience raising our son Trevor. He was diagnosed with Autism Spectrum Disorder at age five (the clinical diagnosis was Pervasive Developmental Disorder, Not Otherwise Specified or PDD-NOS) back in 1998. At the time, autism wasn’t well known and our only exposure to it was Dustin Hoffman’s character in Rainman. We had no idea what the future had in store for us as a family. Would he ever graduate high school? Would he drive? Would he have relationships? Through the years Trevor amazed us with what he was able to do and how he learned to cope with his autism. Today he is a college graduate who lives on his own, drives, works, and has an active social life. Yes, he has challenges that will be with him for the rest of his life. But we learned an important lesson with Trevor; the moment we underestimated him he proved us wrong.
You may have your own perceptions of people with disabilities, whether it be physical (paralysis), cognitive (autism), present at birth (Down Syndrome) or related to an injury (amputation due to an accident). Your perceptions may be due to personal experience, observing a friend or loved one, or what you see in the media. Your perceptions may be inclusive or biased. Only you can decide.
So, what’s your action? Educate yourself. Disability:IN, American Association of People with Disabilities, Special Books by Special Kids, Autism Speaks, Center for Disease Control and Prevention’s Disability and Health Overview, and Northwest Center are some great resources to help you better understand people with disabilities. Do your own web searches, just make sure the information you’re taking in is from credible sources.
Take the time to learn more about disabilities and focus less on the “dis” and more on “abilities.” Oh, and if you want to learn more about Bert, Laura and JT’s story, check out The Lawless One and the End of Time.
Keynote Speaker | Board Director | Autism Advocate | Author | Project Management Expert | Microsoft/Accenture Veteran
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